Wednesday, June 16, 2010

Thoughts on Disability in a Beach Community…

We take some things for granted, like being able to walk a beach. One of our cottage guests this week has a disability. I began to worry as soon as he lurched across the garden, one hand extended, the other working a cane. I watched with admiration as his spastic legs miraculously propelled his body the last couple feet towards me, and I succumbed to his warm smile. We shook hands and connected. I wanted his visit to Wellfleet to be a memorable one.

The couple traveled with a wheelchair but did not get it out of the car. They had booked in February. There had been no mention of handicap or question of whether or not the cottage had ease of access. In fact, Seagull is not the ideal accommodation for anyone with disability because there are steps up from the parking lot, and the living room boasts a shift in floor level. This feature adds character to the place but also complication. I wondered how our guest would handle the step that divides the room in two. Splendidly, according to Sven. (My husband likes to provide background to the cottage paintings and had given his little tour after I left. The man simply jumped from one level to the other, Sven told me.)

“These people are not different from us,” he said later. “It could happen to you. It could happen to me. It could happen to anyone.”

Yesterday I read a moving post by a writer whose daughter has cerebral palsy. The guest post at Mothering Outside the Lines and the presence of our cottage guests got me to thinking about our own town’s accessibility to those who are handicapped. Of course, there are parking spaces for vehicles with a special plate, but a handicap plate is probably not available to tourists from abroad at short notice. We have an excellent new promenade around the marina, with lots of nice benches offering a water view. There are dune benches above some of the beaches, too – Newcomb, LeCount – but beach access itself demands coordination and surely is off-limits to the physically challenged.

At registration, I usually describe local restaurants as part of my spiel. With the cottage guests I ran through options in my mind first, trying to figure out which of them would work for someone with disability. I advised the couple as best I could and made a mental note to improve my knowledge on this aspect of our town in case future guests present similar needs.

I lobbied for the dune benches, and beach access stairs, when I home-cared my elderly mom, but handicapped access to restaurants is not something I had ever thought about before because we never took her out to eat. It is impossible to put oneself in the shoes of a handicapped person, but some of us are more aware than others, due to experience with family members who require special attention.

In a private moment, Sven asked about the handicap and the guest responded that he was born with a disability. He inherited the condition, and it only gets worse as he grows older. Sven invited him to sit down at our dining room table for a chat. The two men discussed Orwell and revolution, among other things. Our guest is a lawyer, a successful one, in England.

“I respect your courage,” my husband said as the man left.

“You can break barriers, social or otherwise, if you can see the human being and disregard how they look, the class they belong to, or their disability,” Sven told me once I had returned from my errand.

Have any of you experienced disability? Do you ever think about what the world is like for handicapped people? What would make Wellfleet more attractive to visitors with disability?

Comments (15)

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I don't have a disability, but I'm not in the best of shape. I realized when we were visiting Germany and Austria that many places (especially centuries old buildings) were not meant for the physically challenged. There were steep hills and steps to climb everywhere we went. I think the U.S. has done a great job of mandating newer buildings and those with renovations be handicapped accessible. I can see where this would be a problem in an older town. Candy Harrington does a lot of accessible travel writing. You should see if she has done anything on Wellfleet.
I also do not have a disability, but I broke my leg last fall, and it gave me a whole new outlook on how difficult it is to maneuver around our world when both legs are not working properly. It was eye-opening, and I now look at the elderly and those with permanent canes, crutches, walkers, wheelchairs, etc., with much more sensitive and empathetic eyes. Fortunately, my leg is back to where it was before the break, but my perspective remains changed forever.
My aunt wanted to take my grandmother (who was in a wheelchair) to FL, but then realized there would be no way to actually get her on the beach. It was a disheartening realization.
1 reply · active 770 weeks ago
Yes, same with my mom. I realized her beach days were over and felt sad about that. But we took her to in the car to watch the ocean from the parkling lot before she became bedridden.
Just yesterday, Sandy, I watched a man in a wheelchair negotiate the lumberyard. He got his chair out of the van, hoisted himself into it, selected his wood and then asked a yard man to help him put it in the van. Then he wheeled himself across the crosswalk, choosing the spot where the curb was lowest on the far side, to pay. With effort, he made it to the sidewalk, but I was so afraid he might miss on his first try and roll back ino the road.
#1) We should immediately grade all curbs on either side of a cross walk. To digress:
#2) People must learn what cross walks are. I actually heard someone honk their horn at person crossing the street there, in annoyance, not by way of a greeting. The man crossing turned and had no idea who the honker was. Humans should always trump vehicles, and the path should be made smoother for those w/ disabilities.

David
There aren't usually dunes to clamber over here in NZ. This makes it a lot easier for people with disabilities to at least SEE the waves. Still no navigating sand with a wheelchair, of course.
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Vera Badertscher's avatar

Vera Badertscher · 770 weeks ago

Thanks for your thoughtful post, and I second the suggestion to see if Candy Harrington has written about your area. If she has not, you might want to invite her.
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1 reply · active 770 weeks ago
Thanks, Living Large, and Vera, for this tip.
Jennifer Margulis's avatar

Jennifer Margulis · 770 weeks ago

Since I walk to buy most of our groceries, I am often either pulling a wagon or pushing a stroller full of food. Doing this makes me aware of every corner in our town that is difficult for a wheelchair to negotiate. We also have three very independent blind people in Ashland and when I see them walking around I think about what could be improved in our town ...

I live in Oregon not Mass but I agree with David that we need to make sure every curb is handicap accessible and that humans need to be given priority. I also think we should try to foster friendships between able-bodied people and those with special needs, so that children can feel comfortable around a lot of different people...

p.s. Thank you for the shout-out and link to my blog. Mark Wada's story about his daughter really touched my heart.

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sven sounds like quite a dude. i lived in a sort of halfway house and befriended plenty of folks in wheelchairs. the world ain't built for wheelchairs, that's for sure, especially downtown la, where the police give jaywalking tickets to those in wheelchairs for using the street in a neighborhood where there are no curb cuts. seriously.
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I have disabilities, but they're not things that are outwardly obvious - more like health problems that inhibit my life. This leads me to think about how I define disability. Often, I feel like the fact that I'm not in a wheelchair means I'm totally fine, which I'm not. Hrmm.

As far as disabilities on the beach, I can barely walk in sand, so I can't imagine how hard it must be to have a mobility issue and try to get around on the beach.
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My father was severely disabled in the last year of his life, so we learned all about the difficulties of simple things like going out to eat or getting a haircut. Because he required a motorized wheelchair, my Mom purchased a special handicap accessible van, which he only used a handful of times before he died. :( It had a ramp on the side so he could wheel himself on and off the vehicle. But you needed about eight feet on one side to unfurl the ramp, so it also had a sticker asking people not to park within eight feet. Once my mother got stopped in the parking lot and asked where she got that sticker ("I hate when people park too close to me and ding my car"). The poor woman was thoroughly embarrassed when my mom said, "we got that because my husband is disabled and needs space for his wheelchair ramp."

My understanding is that the US is much more handicap accessible than other parts of the world, so it's nice to hear that this couple was able to visit Cape Cod.
sarah henry's avatar

sarah henry · 770 weeks ago

This is such a timely post for me, as I recover from (relatively speaking) minor spinal surgery. But getting mobile again, slowly, walking in obvious pain, discomfort, and challenge, has been a humbling experience -- and I find myself having so much empathy for people with walkers, wheelchairs, or displaying obvious signs of some kind of physical disability. The world looks very different when you're not as able bodied as you'd like to be -- your guest sounds inspiring to me.
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I haven't experience a disability but as my dad became old and ill, he needed to use oxygen most of the time. My mom uses a cane. My mother-in-law is 92 and moves slowly. Technically, these might not be seen as disabilities, but I have watched them deal with impatient people who are always in a hurry. I literally hold my breath when my mother-in-law toddles through an airport hoping that someone in a rush isn't going to knock her down. Watching them has made me more patient.
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A few years ago I was hit by a stupid driver from behind. He was texting on his phone and didn't notice that I was stopped at a red light. I was 24 weeks pregnant and went into labor. My boys were with me and also had some minor injuries but healed quickly. My labor was stopped but I herniated 5 discs. I was in excruciating pain for 89 days until I delivered my healthy (but tiny) daughter. Everywhere I went I had to walk VERY slowly. I almost never left the house because my 2 year old was much too fast for me and I was so afraid of him being hit by a car or lost in the store since I could not move fast enough to catch him. I once came out of a bagel shop and an old man got out of his handicapped parked car and asked me if he could help me to my car. NYS would not give me a temporary disabled parking slip because they could not xray my back to verify the disc problems (until she was born). The bigger the baby got, the harder it was on my back.

After my daughter was born I walked EVERYWHERE for months. Through winter (and I live in NY.. we get cold/snow here). It was an amazing feeling.. to walk without pain. I still have occasional problems with my back that sometimes has me in bed for a few days. But I use them as reminders of how luck I am when I am NOT in pain.
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